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Council backs Motor Neurone Disease Charter


Cambridgeshire County Council has unanimously backed a motion to back the Motor Neurone Disease Charter.

At its 17 July meeting, Cllr Amanda Taylor (Lib Dem, Queen Ediths) proposed the motion that was seconded by Conservative Cllr Anna Bailey.

Cllr Taylor said, “It was a privilege to be asked by the MNDA to propose the adoption of the Charter. I’d like to thank all the other county councillors for their support — it is great that people from different political parties can come together over a quality of life issue like this.”

“The local MNDA have described it as ‘fantastic’ and they are looking forward to developing a partnership with the County Council. They will be visiting again so that the Council Chairman* can sign the Charter.”

The motion backed by the Council states:

The Council notes that Motor Neurone Disease is a fatal and rapidly progressing disease that affects up to 5,000 adults in the UK at any one time, and that there are approximately 80 people living with MND in Cambridgeshire at present.

A number of council services are crucial to people living with MND and their families: social care, disability adaptations and equipment, carer support and transport assistance.

The Council supports the Motor Neurone Disease Charter, which declares the care and support that is due to people living with MND and their carers.

The charter identifies five rights:

  1. The right to an early diagnosis and information
  2. The right to access quality care and treatments
  3. The right to be treated as individuals and with dignity

and respect

  1. Therighttomaximisetheirqualityoflife
  2. Carers of people with MND have the right to be valued, respected, listened to and well supported.

The Council is recommended to adopt the MND Charter, which pledges to:

  • Promote the five rights and to communicate and advocate them to all councillors, staff and partner organisations including health and social care professionals
  • Consider the impact of council decisions on people living with MND and their carers
  • Work with local health providers to ensure that services are well co-ordinated
  • Work with the MND Association and partner organisations to create an action plan to meet the expectations of the charter

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